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14 days of Heartbreak
…..and counting.
Many of you know my dear daughter has had countless hospital admissions due to gastric problems, cyclical vomiting.
14 days ago in our local hospital we were called in and informed she’d had a seizure, and was admitted into ICU.
In this first post I shall endeavour to give a short summary, then in further posts when I’m up to it I will try to expand.
We were informed she had Acute Liver Failure.
They were trying to give her all the help they could with the resources they had, whilst in constant contact with Kings College Hospital in London.
They needed to transfer her to London, but she was too poorly to survive the journey at that time.
2 days later, we were told they had managed to stabilise her enough to attempt to move her to London, there is a specialised Ambulance team which only do this.
We were told the journey would be 2 and a half hours, but they had to take her off the dialysis to transport her.
She is 28 years old.
The hours waiting for a phone call was one the worst of an incredibly emotional time.
Approximately 6 hours later we got the call that she had survived the journey.
The last couple of weeks have been very tough, seeing my dear daughter on the machines , tubes, etc etc that are keeping her alive.
The Professor in charge of her treatment spoke to us, and was very honest in telling us not many survive the level of damage.
The “ working hypothesis “ at that time was a paracetamol overdose, my daughter hadn’t eaten for 4 weeks prior, and could only sip water, any oral intake was immediately vomited.
I need to stop now, we are going to visit shortly.
Many of you know my dear daughter has had countless hospital admissions due to gastric problems, cyclical vomiting.
14 days ago in our local hospital we were called in and informed she’d had a seizure, and was admitted into ICU.
In this first post I shall endeavour to give a short summary, then in further posts when I’m up to it I will try to expand.
We were informed she had Acute Liver Failure.
They were trying to give her all the help they could with the resources they had, whilst in constant contact with Kings College Hospital in London.
They needed to transfer her to London, but she was too poorly to survive the journey at that time.
2 days later, we were told they had managed to stabilise her enough to attempt to move her to London, there is a specialised Ambulance team which only do this.
We were told the journey would be 2 and a half hours, but they had to take her off the dialysis to transport her.
She is 28 years old.
The hours waiting for a phone call was one the worst of an incredibly emotional time.
Approximately 6 hours later we got the call that she had survived the journey.
The last couple of weeks have been very tough, seeing my dear daughter on the machines , tubes, etc etc that are keeping her alive.
The Professor in charge of her treatment spoke to us, and was very honest in telling us not many survive the level of damage.
The “ working hypothesis “ at that time was a paracetamol overdose, my daughter hadn’t eaten for 4 weeks prior, and could only sip water, any oral intake was immediately vomited.
I need to stop now, we are going to visit shortly.
Comments
Not sure what to say Tom, except my thoughts are with you all.
Fingers, toes & everything else crossed.
Tony.
xx
Give her a hug from us all at Sky Poker Forum.
Hoping for a positive outcome.
I’d like to start this post by breaking down the “ paracetamol overdose”
When we were in our local hospital, the consultant in ICU told us there were a few ways this could happen, and at present all things point to a paracetamol overdose.
As you can imagine we were quite shocked by this, as my daughter had been in hospital for 3 weeks, we asked how long it would take for this to occur as she couldn’t tolerate anything orally prior to admission as she would vomit , as with her daily medication, hence the admission.
The consultant said the “ markers” showed the signs of a spike then a decrease ( or words to that effect, so this could have happened weeks ago.
Fast forward to Kings college hospital
I asked the professor if they had received the drugs chart from our local hospital, he said they had some, but not all.
I asked how long it takes for paracetamol to have this effect, he said days not weeks.
Two days ago the registrar at Kings told us that they now are working on the “ accidental overdose” route., as in when the body is malnourished, paracetamol can have a gradual effect.
It’s human to try to apportion blame, or find out exactly how this heartbreaking thing can occur, to be honest at this moment in time all we want is for our dear daughter to get better.
Yesterday in hospital it was nice to see she had opened her eyes for the first time, but very upsetting that she was trying to communicate but couldn’t.
My Father in Law is now in his final days/weeks.
The NHS have been hopeless in both instances.
Just want this year to end...............
All the best
Mick
xx
In the first few days and weeks, balancing taking grandson to school, visiting Chloe, working 3 days a week ( me, as wife has been signed off until end Jan, as has her partner) was quite a task, I take my hat off to all the people who manage this long term.
Chloe developed a fever, this was one of the things we were warned could happen and would be very dangerous.
Once again the hospital staff were outstanding in their treatment and diligence, any time an alarm sounded on the bank of drugs at her bedside they acted in the moment.
We were asked to leave her bedside whenever they had to turn Chloe, this was to prevent bedsores.
She was on a ventilator and dialysis alongside countless other medications.
Days passed, we could phone her bedside nurse any time of the day and they would update on any progress or otherwise.
Slowly things began to turn in the right direction.
The doctor informed us they would take the tube out of her throat and insert a trachea, which could have a voice box added when Chloe was strong enough.
She has pancreatitis which is causing a lot of pain, and the blood clot hasn’t liquified yet.
This week I heard my daughter talk for the first time since admission to Kings.
I'll not evoke pious platitudes, just know that you are valued, loved and prayed for.
Sincere best wishes to you and all your family.
Jesus Christ I'm in bits as I type this, I have my Mum safe and home but, if I had to choose I'd ask him to give you joy over me.
Try and have a good Christmas buddy, give your precious Grandson the joy and excitement of the season.
From the heart.
Mark